PARENTING AUTISM & ASPERGERS NEWSLETTER
VOLUME 15
JANUARY 2008
This is Dave Angel and Welcome to the fifteenth edition
of “The Parenting Autism & Aspergers Newsletter”
I cannot believe that it is already over half way through
January 2008 already….
So I’d like to wish all of you a slightly belated Happy
New Year!
Inside this edition you will find:
1. Blog and New Book Latest News
2. Hot Topic of Discussion - Who Pays for Autism?
3. In the News – Autism: The Musical
4. Parenting Tips - BIG EMPTY SPACE….!!
5. Famous Autistic Person - Alonzo Clemons
Best Wishes
Dave Angel
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1. Blog and New Book Update Latest News
The blog is working well so far with a lot of people adding
comments on it which is great……..so keep them coming.
Although for the past couple of days there has been a fault
and we may have a lost a few posts so apologies for that.
But rest assured it’s all working again now.
For those of you who have not been there yet the blog is at
http://www.parentingaspergers.com/blog/
Also The All New Parenting Aspergers Resource Guide Volume 2
is nearly done and definitely on course to be ready for
early February.
I am revealing tips from the book on a weekly basis on the
blog to give you a taste of what it is about (so far I have
covered siblings information and information on an
alternative treatment approach called Glyconutrients)….
And don’t forget that each week throughout this month there
is a competition to win free copies of the book on the blog
…..so make sure you add your comments to the blog to be
in with a chance………..
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2. Hot Topic of Discussion - Who Pays for Autism?
A recent article in The Denver Post described how the family
of a 4 year old child with autism successfully took their
insurance company to court and were awarded the $110,000 that
they had invested in a treatment approach for their daughter
Abby.
The standard US insurance company coverage towards autism works
out to be on average about a maximum of 20 hours each of
occupational therapy, physical therapy and speech therapy in a
lifetime.
Well whoopy doo - that sure seems a good deal for paying those
big monthly premiums!
At a rate of about 3 hours of therapy for every year from say
4 to 24 years old that should certainly iron out any issues
(written with a high degree of sarcasm)!
Whilst the insurance company do not feel any precedent has been
set - I certainly thing that this could prove to be a
landmark case for families with autistic children in the USA.
The base of the insurance comapnies argument seems to be
around the therapy being classed as “not medically
necessary”.
Which I guess in a “life or death” way is kind of true - but
it ignores the issues of quality of life and the right to
fair chances for all involved in a big way.
And like many insurance practices quite frankly - IT STINKS!
The therapeutic approach that Abby used seems to have been
LEAP which is a version of ABA therapy.
There is apparently a little federal funding now available for
families in Colarado but only a tiny amount - compared to the
numbers of families needing help.
But this case certainly gives hope for other families to
consider challenging the “fat cat” insurance companies in
order to get the best help possible for their child.
So good luck to anyone going down that route….
To read the full story go to:
http://www.denverpost.com/news/ci_7838774
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3. In the News – Autism: The Musical
I just couldn’t resist reading about this news article when I
saw the headline “Autism - the Musical”….
What next I thought to myself - “Autism On Ice” or “Autism -
Dancing with The Stars”!
Actually though it is more serious and less frivoluous than
the headline suggests….it refers to a new documentary film
covering the lives of 5 young people on the autistic spectrum
from the LA area over a 6 month period.
During this period they are supported to express their creativity
by putting on a musical with a professional acting coach.
It is due to air on HBO in April in the USA and I imagine must
be very professionally done as there is mention of it getting a
possible Oscar nomination.
One of the directors Sasha Alpert said that “this is the first
theatrical-length film about autism that is not depressing. It’s
intimate and joyful,and it shows in a very honest way how
difficult it is to raise a child with autism.”
It sounds really fascinating to me and another great opportunity
to help further widen the understanding of autism across the
general public by exposure on HBO.
This is particularly welcome when it sounds like the film will
be true to the reality for families - and star real children
with autism (and not actors “pretending” which can often end up
looking very cheap and quite frankly offensive).
My only hope is that perhaps the BBC will pick it up here in the
Uk and likewise on the major networks in other countries like
Australia, South Africa, Ireland etc.
So keep an eye out for this in the near future.
To read more about the film go to:
http://www.reuters.com/article/reviewsNews/idUSN1326447320080113
and you can view a free clip on YouTube:
http://www.youtube.com/watch?v=0DR1w4LdOB8
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4. Parenting Tips - BIG EMPTY SPACE….!!
As I mentioned last month I currently have no more parenting
tips passed on to me by parents and readers of the newsletter.
So unless people can help out in this section (and obviously
help others too in the process) then it will have to stop.
I have set up a special email address tips@parentingaspergers.com
for you to send them too.
There are obviously lots of great tips being posted on the blog
lately but I don’t want to repeat the same material again here
in the newsletter.
However if you do want to check out recent siblings tips go to:
http://parentingaspergers.com/blog/2008/01/01/how-to-help-sibling-relationships/
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5. Famous Autistic Person - Alonzo Clemons
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Alonzo is an American sculptor of animals who is also diagnosed
as an autistic savant.
An autistic savant is defined as “….. a person with both autism
and savant syndrome.
Savant syndrome describes a person having a severe developmental
or mental handicap with extraordinary mental abilities not found
in most people.
This means a lower than average general intelligence (IQ) but
very high narrow intelligence in one or more fields.
Savant syndrome skills involve striking feats of memory and
arithmetic calculation and sometimes include unusual abilities
in art or music.” (source: Wikipedia)
According to Alonzo’s entry also on Wikipedia (the online
encyclopedia extraordinaire!) he is able to create amazing
sculptures of animals even if he has only glanced at them once.
In fact on another website it is said that “Alonzo can see a
fleeting image on a television screen of any animal, and in
less than 20 minutes sculpt a perfect replica of that animal
in three-dimensional accuracy. The wax animal is correct in each
and every detail — every fiber and muscle (web source
http://autisticsavant.blogspot.com/2007/09/alonzo-clemons-genius-among-us.html)
This is something that he has been able to do since a young
child in really quite amazing detail.
His work took the art world by storm when it premiered in
1986 in a gallery in Boulder, Colorado.
Maybe his best work is a life size sculpture entitled
“Three Frolicking Foals” which he completed in just 3 weeks!
Whilst achievement in the art world is really awesome -
almost just as great (in fact maybe even better in my humble
opinion) is that Alonzo is making great steps towards his own
independence as an adult.
He lives in his own apartment, has a part time job and is
a highly valued member of the community in Boulder.
So hats off to Alonzo as an excellent example of a
living breathing fmaous autistic person who can be a great
inspiration to many.
You can find out more about Alonzo as the following website:
http://artsales.com/ARTists/Alonzo_Clemons/Prodigious_Savant_Syndrome.htm
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Well that’s all for this edition and I hope you
enjoyed it.
And the next edition of the newsletter should be due in
mid-February.
And don’t forget that the Brand New Parenting Aspergers
Resource Guide Volume 2 will be available for you in early
February……so watch your emails for more on that.
And as ever………please send in any inspirational stories
that you know of, any questions that you would like our team
of experts to answer, any topics that you wish to be discussed
and news stories that you want to share (send them to:
tips@parentingaspergers.com).
We will publish as many as we can.
Until next month………
Best Wishes
Dave Angel
http://www.parentingaspergers.com
P.S. Please feel free to forward this newsletter to your
friends.
Parenting Aspergers
Information Online,
PO Box 789, Portsmouth
PO1 9DY United Kingdom
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The write of the material present in the “The Parenting
Autism & Aspergers Newsletter†believes that a
multi-disciplinary approach to parenting aspergers
children is of extreme importance. This means combining
the approaches of a wide variety of disciplines involved
with aspergers children and their parents such as social
workers, nurses, teachers, doctors, psychologists,
psychiatrists, counsellors, speech therapists. Also it
involves using the knowledge and information of
parents them selves. The author recognizes that within
scientific, educational, social and medical fields there are
widely divergent viewpoints and opinions. This material
is written for the express purpose of sharing educational
information gathered from the experiences of the author
and other people in the areas mentioned above. None of
the information contained in this email is intended to
diagnose, prevent, treat, or cure aspergers, nor is it
intended to prescribe any of the techniques, materials or
concepts presented as a form of treatment for aspergers.
Before beginning any practice relating to aspergers it is
highly recommended that you first obtain the consent
and advice of a qualified health, education or social care
professional. Should you choose to make use of the
information contained herein without first consulting a
health, education or social care professional, you are
prescribing for yourself, which is your inalienable right.
However, the author assumes no responsibility for the
choices you make after your review of the information
contained herein and your consultation with a qualified
health, education or social care professional. None of the
statements in this article or in the book have been
evaluated by the Food & Drug Administration (FDA),
or the American Medical Association (AMA). This
material is not warranted for any particular or general
purpose whatsoever. Viewers of this material assume
any and all risks for any use of this material. This
material may not be reproduced in any way.
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