Explaining Aspergers to a friend
Hi everyone I’ve just got back from another nursery visit today; as my quest continues to find a nice place for my daughter. This morning’s visit was much better than last week – lovely staff, plenty of great activities, good health and safety procedures, tidy and clean BUT …
No places are available until April – Doh!! (as the “great” Homer Simpson would say).
Never mind onwards and upwards as they say. And talking of onwards I’m currently in discussion with a web designer out in California to help me design the new Aspergers site – which is going to be much, much better and more interactive than the current site! My aim is to build it into much more of a community where we can all share, learn and develop alongside one another. As well as offering much more support and help than is currently possible. So keep tuned in and like I say I am hoping this will all be ready in January.
This week’s blog post covers the following thorny question …
Question
How should a 14-year-old boy with Asperger’s explain to a neurotypical friend what Asperger’s is?
Answer
Here is a good script for a 14-year-old to follow: (Notes might be helpful and your son should practice this with you before he talks to a friend.)
“Asperger’s is a form of autism. When I say autism, I mean that there’s a little difference in how my brain is put together. It’s probably been there since I was born, and it’s affecting me as I grow up. What I have is called Asperger’s Syndrome. The symptoms I have were first seen by a guy named Asperger. It can affect my language, awareness of my senses, my movements, and emotions. Asperger’s can’t be cured, but there are things like medications out there that can help me deal with it. It doesn’t make me weird or wrong or inferior; it’s a different way of experiencing the world that most people don’t understand.”
“You might have heard me say a lot of up front things to people, and that’s one of the differences. Kids with Asperger’s Syndrome say exactly what they mean without being aware of what can happen. We might not be aware of the consequences of what we say. Someone might hear me say something, and they might think I meant something else, or someone might get offended at what I say. I don’t mean to put people off or offend them, but that’s the way the words come out, and I’m not always aware of how people will react. On the other hand, some people will see me as being totally honest, but not offensive. It depends on the person who I’m talking to, but I don’t mean to offend anyone. I need help in saying things carefully so that I don’t hurt people’s feelings.”
“Another situation I have trouble dealing with is body language. The way people move or sit can say a lot about how they feel. Sometimes, I make mistakes when I see other people’s body language. I can’t get a handle on facial expressions and what they mean. If I’m talking with someone and they’re being subtle with their body language, I won’t notice it, and I don’t get what they’re saying with their body language. It can make the other person angry or frustrated or confused, but, with time and some help, I can make myself more aware of what someone means by their body language.”
“Hey, there’s one really huge difference that I go through. I don’t really care about being cool, and some people think I’m going against a lot of other people, but that’s not what I’m trying to do. It might make people give me a hard time or think I’m out there, but I’m not. I just have my own special interests.”
“When I go to a movie and the sound is loud, I don’t like it. I don’t even want to be in a movie theatre if there’re loud noises or a lot of lights flashing, like in the sci-fi movies. It makes me just want to go home to get away from it. Sometimes sounds and lights are so intense that they actually hurt me.”
“But there’s one thing I hope you’ll understand. Having Asperger’s isn’t all bad. I’m honest, caring, and really smart. The doctor said that there’re a lot of really successful people, like doctors, authors, and business people with Asperger’s. If you want to ask me any questions, I’ll answer them as best I can.”
In addition to using the above script, read the book Asperger’s Download: A Guide to Help Teenage Males with Asperger’s Syndrome Trouble-Shoot Life’s Challenges by Josie and Damian Santomauro.
This book is a terrific resource for adolescents and their parents. It discusses some of the life passages in young adulthood, and it is written in terms that teenagers find understandable. It has relevance and authenticity based on the author’s personal experiences, and it can help your son get through his teen years with less interpersonal conflict.
Thanks for reading and enjoy your week,
Dave Angel













