PARENTING AUTISM & ASPERGER’S NEWSLETTER
VOLUME     
February 2010        

Welcome to the February 2010 edition of “The Parenting Autism & Asperger’s Newsletter

Inside this edition you will find:

1. Hot Topic of Discussion – The Financial Burden of Autism

2. In the News – Cable Television Movie Biopic of Temple Grandin

3. Prominent People Linked with ASD – American author Temple Grandin, PhD

————————————————————
1. Hot Topic of Discussion -  Autism Spectrum Disorders and the Financial Burden of Treatments

Families who are dealing with Autism or Asperger’s Syndrome will tell you that healthcare reform is desperately needed in America.  In most states there are no or very little regulations on healthcare coverage for Autism treatments.  For years the burden has been placed on local school districts to offer expensive treatments.  The problem with this is that there is no way the school district budget can handle the costs of these treatments in the appropriate quantity or quality needed and deserved.

For those families who can afford private treatments, they are usually available.  However, at thousands of dollars per month, per child, even those with resources in the upper class range are hard-pressed to continue such expense over the course of a child’s lifetime.

Thankfully, changes are being made in the coverage and availability of Autism treatments in the United States.  Programs are available that may help families with the financial burden.  This article highlights a few of these options.

http://www.theautismnews.com/2010/01/25/dealing-with-the-financial-burden-of-autism/ 

*People mentioned as having Asperger’s Syndrome may or may not have actually have been diagnosed with an ASD.

————————————————————-
2.  In the News -   Major Cable Television Station Airs Autism Biopic

Every once in a great while, a film maker with delve into the area of Autism spectrum disorders and come out with a realistic movie character.  Not since the movie
Rain Man has a film gotten as much attention as the upcoming made-for-cable biopic about the life of Temple Grandin.  Dr. Grandin was diagnosed with Autism as a child, and went on to earn her PhD.  

This movie tells the story of Dr. Grandin’s childhood struggles and how she went on to become world-renowned consultant and professor of animal sciences.

In connection with this movie, HBO has added a promo on their website, http://www.hbo.com/movies/temple-grandin  
along with interactive Autism support.  This is a huge step in the right direction for awareness of what it is like to live with an Autism spectrum disorder.
Read the full story here:

http://www.theautismnews.com/2010/01/21/barnes-noble-hbo-team-to-publicize-autism-biopic-temple-grandin/

*People mentioned as having Asperger’s Syndrome may or may not have actually have been diagnosed with an ASD.

————————————————————

3. Prominent People Linked with ASD -  Temple Grandin, PhD

In the spirit of Autism awareness, this month’s featured individual is Temple Grandin.  (You can read about the upcoming HBO movie about her life in the “In the News” section above.)

When a child is newly diagnosed with an Autism spectrum disorder, Dr. Temple Grandin is one of the most recommended resources available.  She has written many books about Autism and how it has affected her life, which offers parents and affected individuals alike hope and understanding. 

You can read more about Temple Grandin here:

http://www.templegrandin.com/
*The person mentioned above may or may not have Asperger’s Syndrome.
————————————————————-

I hope this month’s newsletter has intrigued you and provided new and useful information.

The next edition of the newsletter is due in March, 2010.
      
And as always … please send in any inspirational stories, any questions that you would like our team of experts to answer, any topics that you wish to be discussed, and news stories that you want to share VIA THE BLOG.

We will publish as many as we can.

Until next month………

Best Wishes

Dave Angel

=============================================================

Articles posted this week at The Parenting Aspergers Community

=============================================================

My son with Aspergers doesn’t want to eat at school. What can I do?

Eating problems are very common in children with Asperger’s Syndrome. There can be a variety of issues that cause a child to deny themselves food. Digestive problems, social discomfort, and behavioral problems are all real and possible concerns when it comes to the nutrition of the child with Asperger’s. Since your question specifically asks about eating at school, these problems are probably not the cause. If any of these issues were present, your son would show an aversion to eating at other times and not just at school. The likely cause of your son’s aversion is …

To read the full article go to: -

http://www.parentingaspergerscommunity.com/members/430.cfm

============================================================

How can I get help with respite/child care for my child with Aspergers?

There’s no question about the love you feel for your child, but let’s face it. Caring for a child with Asperger’s Syndrome can get stressful, tiring, and lonely. When you find yourself avoiding social situations because you’re uncomfortable leaving your child, it’s time to find an alternative plan. You can’t spend 100% of your time caring for others without time to care for yourself. When preparing to take a plane trip, the flight crew reminds the passengers to apply their own oxygen masks before assisting others. In other words, you will be worthless unless you take care of yourself first …

To read the full article go to: -

http://www.parentingaspergerscommunity.com/members/429.cfm

============================================================

Where can I find psychologists who have expertise in Asperger’s Syndrome?

Whether you are trying to get an evaluation for a diagnosis of Asperger’s Syndrome, or trying to build a support team for a child who has already been diagnosed with Asperger’s, it is necessary to include a good psychologist. A psychologist with experience in Autism spectrum or Asperger’s will be a vital member of your child’s medical team. Finding a specialist can be a bit difficult unless you know where to look …

To read the full article go to: -

http://www.parentingaspergerscommunity.com/members/428.cfm
============================================================

Hi there –

Welcome to this week’s blog post which is all about Aspergers and employment.

Also a quick note to let you know that I am just putting the finishing touches to my latest ebook “A Parents Guide to Emotions and Communication in Children with Aspergers” which will be available some time in the next 7 days for all members at http://www.ParentingAspergersCommunity.com

Here’s this week’s article –

Question

I want to help my son with Aspergers to get employment in the field that he does well at, but there is no one out there who will give him a chance-Help!

Answer

The job market can seem like a cold, cruel place.  So many people are competing for a hand full of jobs, hoping to break into their field of interest.  It truly is a rat race.  There are things you can do to help your son find his place in the battlefield of employment.

You’ve already given him a good start by encouraging him to find a career that is focused on one of his interests.  People with Asperger’s Syndrome can have very strong obsessions.  The amount of attention your son places on his obsessions guarantee that he will be extremely knowledgeable in that area.  Not only that, the personal involvement makes him intensely happy.

“Developing Talents:  Careers for Individuals with Asperger’s Syndrome and High-Functioning Autism-Updated and Expanded Edition” by Temple Grandin and Kate Duffy is an excellent resource to use while planning to help your son find the perfect opportunity.  This is a thorough account on employment prospects and opportunities available for people with Asperger’s.

An internship is a good way to get a foot in the door of a possible employer.  Many companies that are under hiring freeze still have work that another person could be doing.  By offering time as an intern, your son could receive valuable on-the-job training in his field of interest.  It’s true that he wouldn’t be a paid employee, but once that hiring freeze is lifted, he’ll be first in line for the job.

Volunteering is another option. Although not as structured, volunteering is similar to an internship, meaning no pay.  Volunteer opportunities can be found in every community.  They may not be directly related to his field of interest, but he could learn how to be a good employee in many different situations.  Not to mention, the volunteer hours will look really good on his resume.

Do not discredit the idea of your son accepting a job unrelated to his area of interest.  Sometimes you have to work up a little bit to that preferred position.   A company that does business in his area of interest may have openings in another department.  Lateral moves happen all the time.  And if it doesn’t, he will have solid work experience to add to his resume when he’s ready to make the jump into his desired field.

Finding employment based on your son’s interest will assure a successful and enjoyable career.  These tips and suggestions should get you started building your son’s resume and enabling him to secure the job of his dreams.

Thanks for reading,

Dave Angel

=============================================================

============================================================

Hi there,

Welcome to this week’s blog post which cover Aspergers, The Future and an apology!

First up the apology … I somehow messed up the link yesterday to discover more about Craig Kendall’s excellent book “The Aspergers Syndrome Survival Guide”.

If you’re interested then Click This Link Now

Now on to the article which looks at the following question:–

Question

I am worried about the future and keeping in touch with my grown son with Asperger’s now that he has left.  Any advice for me?

Answer

People with Asperger’s Syndrome usually have problems building and maintaining solid, long-lasting relationships.  However, they can and do form bonds with a select few.  Their parents are likely to make the list of permanent contacts.  Your son may be grown and out of the house, but you weigh heavily on his mind.  You were there for every special occasion, creating memories that burn brightly in his highly intelligent mind. 
 
The point that bothers you is probably his inconsistent contact.  Isolation is a common issue in people with Asperger’s Syndrome.  Your son’s core nature is to be alone.  He is more comfortable living among his things and obsessions than he is with people, even his own parents.  It’s not intentional.  This is one of those areas in which you will have to take control. 

Be honest with your son.  Tell him that, unlike him, you do not have Asperger’s Syndrome.  You need the conversation and company that he is so willing to avoid.  As his parent you have to maintain contact.  It’s your job to think about him and worry about him, no matter how old he is.

Perhaps you could make a calendar schedule for him.  On the calendar, you could fill in the dates that you’d like to hear from him by telephone and dates for actual face-to-face visits.  With the calendar, your son will have a visual timetable in which to refer.   Make sure you give him a little space; he is an adult.  As his parent, a daily visit or phone call would be perfect.  As the adult child, he’s probably thinking a couple of calls a week and maybe a visit.

Make plans to visit his home regularly.  Not daily, maybe bi-weekly, but definite monthly visits should be tolerable.  You’ll need to assure yourself that he is taking care of his household chores, his body, his health and wellness, his bills, and any other areas of his life. 

Letting go of control is difficult for most parents.  Your son’s needs make it that much harder for you.  You can take comfort in the fact that you have raised your son to be the best he can be.  Try not to worry; concentrate on his happiness and success.  He may not say it, but he’ll be thankful for your involvement in his own way.

Thanks

Dave Angel

PS I would highly recommend visiting Craig Kendall’s “Aspergers Syndrome Survival Guide” website today if you haven’t already then Click Here Now to do so.

PARENTING AUTISM & ASPERGER’S NEWSLETTER
VOLUME
January 2010

Welcome to the first 2010 edition of “The Parenting Autism & Asperger’s Newsletter”.
It’s a new year and a new decade!

Inside this edition you will find:

1. Hot Topic of Discussion – Autism on the Rise

2. In the News – Asperger’s Parents Resist Name Change

3. Prominent People Linked with ASD – American Actor Matthew Laborteaux

4. Various Extras …

————————————————————
1. Hot Topic of Discussion -  Removing Asperger’s from the Spectrum?

How would it feel if you had worked hard to find the appropriate doctors, therapists, and services for your child, and finally received an accurate diagnosis of Asperger’s Syndrome, only to learn that a group of psychiatrists had decided to remove Asperger’s Syndrome from existence?

Many families are facing this very reality and they are not happy.  The DSM, a diagnostic tool used in cases of Autism Spectrum Disorder, is being revised in 2012.  Several mental health experts are pushing for the Asperger’s Syndrome diagnosis to be removed from the DSM and essentially folding into the high functioning Autism category.

Many mental health experts disagree, however, as do families who are affected by Asperger’s Syndrome.  They feel removing variations from the spectrum diagnosis will lead to added confusion instead of demystifying Autism.

In this article, you can read the thoughts on both sides of the issue from parents, experts, and Autism advocates.  There seem to be pros and cons from all viewpoints.

Do you agree?  Should Asperger’s Syndrome remain on the DSM as part of the Autism Spectrum Disorder?  Read more about it by clicking this link:

http://www.theautismnews.com/2009/11/04/aspergers-parents-resist-name-change/

*People mentioned as having Asperger’s Syndrome may or may not have actually have been diagnosed with an ASD.

————————————————————-
2.  In the News – Is Autism on the Rise?

Just as Autism Advocacy groups have been claiming for the past few years, Autism is rising, and now the Centers for Disease Control and Prevention is in agreement.

A recent study by the CDC raises the count to 1% of all 8 year olds.  This is a 57% jump from just four years ago.  If you translate these percentages, you will find that one in every 110 children is diagnosed with some form of Autism Spectrum Disorder.  That comes down to one in every 70 boys and one in every 315 girls, overall, with a diagnosis of ASD.

So, what is the cause of this increase? Because the diagnostic criteria for Autism Spectrum Disorder is subjective, it is difficult to say with accuracy what is causing this increase in cases.   The Centers of Disease Control and Prevention say there is no absolute cause for this increase, but do site the improvement in diagnostics and awareness as one reason for the swelling numbers.

You can read the article and the full report by the Centers of Disease
Control and Prevention by clicking this link:

http://www.theautismnews.com/2009/12/19/kids-autism-on-the-rise-research-shows/

*People mentioned as having Asperger’s Syndrome may or may not have actually have been diagnosed with an ASD.

————————————————————

3. Prominent People Linked with ASD -  Actor Matthew Laborteaux

Depending on your age, or possibly your cable or satellite television subscription, you have most likely seen an episode of “Little House on the Prairie”, starring the late Michael Landon.  This popular American television series was a huge hit back in the 1970’s and many people, young and old, still watch the syndicated episodes.

The role of Albert Ingalls, the son of Michael Landon’s character, was played by a young American actor named Matthew Laborteaux.  His role on this hit series is one that he is most remembered for, and fondly remembered at that.

Matthew’s bio includes that he was born in 1966 with Autism and a congenital heart defect.  Another article states that he was considered Autistic until he was five.  You can read more about Matthew Laborteaux by clicking the following links:

http://www.imdb.com/name/nm0479612/bio

http://www.people.com/people/archive/article/0,,20071697,00.html

*The person mentioned above may or may not have Asperger’s Syndrome.
————————————————————-

4. A Few Extras …

a.) Summer Camp Pennsylvania

“Hi Dave,

I came across your site and thought that your members might like to learn about Summit Camp, which caters towards children with issues of attention, including aspergers.  Here’s a short article on our camp.  We’re located in Pennsylvania.  Is this something you can post?

Thanks,

Gene …

We all know that raising a child with special needs presents challenges at almost all stages of development.  Whether in interacting in social settings, dealing with everyday tasks, or learning critical life skills, a special needs child needs to be in the appropriate environment to reach the heights that we all hope for. As Senior Director of Summit Camp, I’ve seen countless of these children attain goals and reach new heights in the warm and encouraging atmosphere of our summer camp, travel, and school year weekender programs.

With our “Magic On the Hill,” Summit Camp has been meeting the needs of special needs children since 1969.  Located in Wayne County, Pennsylvania, our camp and travel programs serve children ages 8 – 19 with attention issues.  The various diagnoses that a camper may have include verbal or non-verbal learning disorders, AD/HD, Asperger’s Syndrome, Tourettes Syndrome, and/or mild mood disorders.  We provide a consistent environment for these children that enables them to better establish meaningful and mutually rewarding relationships with other children – something you know is often times difficult for them in the traditional school environment.

We understand that each camper is unique and has his or her own challenges that we work to overcome in order to meet the basic needs for acceptance, recognition and respect.  But throughout all of the various sessions and activities, certain goals are constant – we look to establish and reinforce feelings of success, confidence, enthusiasm and self-worth in all of our campers.  These are the traits that they may not attain in the typical social environments, and I believe we can fill those voids.

Through traditional camping activities – sports, arts and crafts, hiking, and other camp programs, we work to help them attain these traits.  Yet, each program is geared towards developing the social interaction skills of the camper and allowing them to identify their special interests. Our staff is masterful at bringing each camper on at their own pace while also involved with their bunkmates.  Older campers also have the opportunity for “personal development training,” such as baby sitting or auto repair, and during summer sessions they take part in three-day overnight trips, while younger campers can participate in afternoon daytrips.

We’ve seen children build friendships, improve social skills, gain independence, and learn the life skills that we all need to succeed.  Through it all, the safety of our campers is paramount. We have 250 staff to supervise and nurture the maximum 300 campers our camp hosts at a time.

I encourage you to check out our website and learn more about Summit Camp and the “Magic on the Hill.”  It’s made a difference in the lives of so many special children and their families, and it may be the perfect fit for your child as well. For more information visit www.summitcamp.com.

b.) Trip for ASD Kids from USA to UK

“ From: Dr. Beverly Daley

I   am excited to announce that Childrens Hospital Los Angeles has created  a program in England this summer specifically designed for  young people with ASD. Limited to 15 participants and staffed by Jill Hudson, two post-doctoral students, a leader from Putney Student  Travel and me, the group will visit Oxford and London for ten days in  July. It will be stimulating, educational, and a lot of fun!

More details at http://www.aspennj.org/pdf/events/putney-student-travel.pdf

c.) Guardianship Court

“ Dave – Wanted to share with you:

We just finished with our guardianship court hearing for our 18 yr old Asperger son. Don’t know if you’ve mentioned this on your blog before, but we were advised by our CARD representative to file as “guardian advocates” for our son, to be able to continue to assist him with major decisions (residence, school, medical consent, etc) and handling finances. In the US, when someone is 18, they make their own decisions, and he’s not yet mature enough or ready at this time. We can also file claims for benefits on his behalf with Social Security, etc. So it’s a good thing, and I recommend it to other parents of teen aspies.

Thank you for all the wonderful posts, they are so timely and uplifting, it is a blessing to have this virtual support group and see what other parents have to say 24/7!

Regards,

Mercedes”

————————————————————

I hope this month’s newsletter has intrigued you and provided new and useful information.

The next edition of the newsletter is due in February, 2010.

And as always … please send in any inspirational stories, any questions that you would like our team of experts to answer, any topics that you wish to be discussed, and news stories that you want to share VIA THE BLOG.

We will publish as many as we can.

Until next month………

Best Wishes

Dave Angel

Hi there this week’s articles looks at Aspergers and bullying.  But before that I would like to say a big thank you to everyone who visited my January sale page and invested in one of my Parenting Guides in the past week.

Also another quick note – if you’ve got an Aspergers question that you want to ask and get answered on the blog in 2010 please take my survey  in the next few days at …

http://www.surveymonkey.com/s/3Q27SH3

OK on to this week’s Aspergers article –

Question

How can I help my daughter with Aspergers to deal with bullying and feeling like ‘she is an alien’ (her words)?

Answer

It is very common for children with Asperger’s Syndrome to feel different.  These children are very intelligent and the fact that they have struggles in many different areas is very obvious to them.  You frequently hear children and adults with Asperger’s refer to themselves as “from another world”.  They spend much of their lives trying to fit into a world that doesn’t seem to accept them.

Here is a child who has trouble making and keeping friends, may appear clumsy and awkward, is sensitive to sound or light, has strange obsessions she talks about all the time, and has difficulty with changes in routines or schedules.  All of these things are bombarding your daughter’s mind when everyone around her is going through the day happily in a group, while she watches from afar.  It’s not surprising she is feeling like an alien.

Because of the differences that make children with Asperger’s stand out from the crowd, they also frequently have to deal with bullying.  They are smart, capable of handling their school work for the most part, but keen on following the rules and doing what is right.  You will read about Asperger’s kids being labeled as geeky or nerdy.

A child who is being bullied may not realize that she is supposed to tell someone that it is happening.  When you struggle with communication, it is difficult to know when or even how to speak up.  She may be realizing for the first time that she has been a target all along.

Assure your daughter that you understand her statement regarding feeling out of place.  Tell her that there are ways to control bullying and come up with a written plan of action.  Talk to her about the specifics and help her see that she can find her way around these trying situations.

Involve your daughter’s school personnel.  They may be able to offer suggestions that can be added to her educational plan to make things easier for her, such as additional individual therapy or social skills classes.

Do some research and look for books and websites that you can use to help your daughter.  For example, “Perfect Targets: Asperger Syndrome and Bullying; Practical Solutions for Surviving the Social World” by Rebekah Heinrichs (foreword by Brenda Smith Myles) would be a good option for your situation.  Covering bullying on several angles, this book will help you teach your daughter exactly what constitutes bullying and what can be done to prevent it.

With help, your daughter can get past her feelings of alienation and helplessness.  Having the support of her parents and professionals will prove invaluable and in time, she’ll be feeling less like a target and more like the capable human being she is.

Thanks for reading,

Dave Angel

=============================================================

============================================================

Hi there and welcome to this week’s blog post which looks at children with Aspergers and physical illnesses.

Just one quick note before the article – If you have a question that you wanted answered about Aspergers on the blog in 2010 please go to the following web page and submit it to me …

http://www.surveymonkey.com/s/3Q27SH3

OK now on to this week’s question:

Question

How do children with Asperger’s cope with physical illnesses?

Answer

There is no one specific way that children with Asperger’s react or deal with physical illnesses. Some children with Asperger’s tend not to be very in tune with their bodies or they don’t know how to express what they are feeling. If a boy has a sore throat, he may either not notice this or he may not understand that this is a physical symptom that should be reported to a parent. Some children with Asperger’s respond to illness with anxiety. They become upset if they are sick.

Most children with Asperger’s tend to find illness upsetting not only because they feel bad but also because it can disrupt their daily routine. If they have a stomach flu, not only are they physically uncomfortable, but they can also be kept home from school. These disruptions can be disturbing for a child with Asperger’s who thrives on order and routine.

Dealing with doctors and hospitals can be unsettling for children with Asperger’s Syndrome. Doctor’s offices and hospitals are designed to be efficient places and often nurses or doctors are not aware of a child with Asperger’s special needs. In her book entitled “Prescription for Success: Supporting Children with Autism Spectrum Disorders in the Medical Environment,” Jill Hudson, M.S., CCLS, looks at ways to make the medical experience easier for children with Asperger’s and their families. This book contains information that medical staff, parents, and educators can use to better interact with children with Autism spectrum disorders. The book contains a CD with printable forms and worksheets, which can be distributed to the people who work with your child.

It is a good idea to talk through some different medical scenarios with your child, before he or she gets sick. Children might not understand what would happen to them if they broke a bone or if they fell off their bike and needed stitches. Exposing them to these ideas before they become a reality can be very helpful should an emergency situation arise.

It can also be helpful to a child with Asperger’s if you talk to him about his own body and how it feels and how it should or shouldn’t feel. Sometimes, children with Asperger’s don’t know if some body part feels wrong or funny, and they don’t know that they should mention it to a parent. Talking through these options with your child can help raise his awareness.

Thanks

Dave Angel

=============================================================

Articles posted this week at The Parenting Aspergers Community

============================================================

We want to get a family dog but not sure if that’s a good idea as our son with ASD is often timid of dogs. Can you offer a suggestion as to a particular breed of dog that may be OK?

There are many dogs that are considered to be good with children. When you are looking at the different breeds of dogs, be sure to look at the needs of your entire family. If your son with Asperger’s is a bit afraid of dogs, keep that in mind. If both adults in the house work, that should be a factor in what type of dog you would want to get. If there are other children or other pets already in the home, be sure to think about that as well … To read the full article go to: -

http://www.parentingaspergerscommunity.com/members/389.cfm

============================================================

My grandson is five and a half years old and is in the process of diagnosis for Asperger’s Syndrome. There are real issues at present with his toilet behaviour. He is unable to wipe himself after using the toilet and although this is dealt with at home and during his first year in primary school, now he is in year one the staff are refusing to accommodate his need for support in this area. Where does my daughter stand legally with this issue please? Afterall does the school not have a ‘duty of care’ and encourage progress in this area. They appear to have no understanding whatsoever of the issues surrounding this condition and I know my daughter is embarking upon a long and arduous struggle in order that my grandson has a happy experience throughout his school day.

Even today, many schools are unprepared to deal with issues presented by children with Asperger’s Syndrome and other autism spectrum disorders. Much of this comes from the schools and teachers not being educated about the special needs of children with Asperger’s Syndrome … To read this article go to: -

http://www.parentingaspergerscommunity.com/members/388.cfm

============================================================

I am having a rough time right now with my 12 son with AS. He started puberty in the 4th grade and since I am his only parent…he asks/tells me everything! So with all these hormones raging and the characteristics of AS, my son is a bit out of control. He has, what I guess you would call, anger management issues. Not like a “normal” teen would have. No matter what I say, as or do is right. He gets very defensive when asked something as trivial as did you brush your teeth! Can you give me any ideas. His medications were recently changed because of this and he hasn’t been on it long enough to see if it is going to work. Do you have any information on Abilify? He is much taller than me; I can still handle him when necessary, but I am the only person that can get him out of a true AS Meltdown. Can you help?

Adolescence is a traumatic time for all teenagers, but for teens with Asperger’s Syndrome it can be a very challenging period. It can be a very difficult period of time for their parents as well! Adolescence is a time where the social demands on teens can become overwhelming. Teens with Asperger’s can struggle with social frustrations, depression and loneliness, and anxiety. Add hormonal issues on top of all this, and life with a teen becomes nearly impossible! . . .

To read the full article go to: -

http://www.parentingaspergerscommunity.com/members/387.cfm
============================================================

PARENTING AUTISM & ASPERGER’S NEWSLETTER VOLUME 28     
December 2009        

Welcome to the 28th edition of “The Parenting Autism & Asperger’s Newsletter”

Inside this edition you will find:

1. Hot Topic of Discussion – The Effectiveness of Early Intervention programs

2. In the News – US Food and Drug Administration approves Abilify® for ASD use.

3. Prominent People Linked with ASD – Actress Daryl Hannah

Thanks

————————————————————
1. Hot Topic of Discussion – Is Early Intervention the Answer?

Thanks to the recent advances in the areas of research and awareness, children are being diagnosed with ASD at increasingly younger ages.  In the past, a child with Asperger’s Syndrome would easily go undiagnosed until the second year of school, or even later.  Pediatricians are now using guidelines for developmental milestones, along with parental checklists, to question whether young children need to be tested for ASD.  Because of these efforts, children as young as 15-18 months of age are receiving the Autism diagnosis, allowing for early treatment options.

Early Intervention programs are state-run government programs that offer testing, evaluation, and treatments to children from birth to age three, with medical needs and/or developmental delays.  These programs are funded by state and federal government agencies and are offered to families at no cost beyond health insurance coverage.  In most cases, testing is done in the child’s home and therapies are offered within the home if possible.

Recent studies are showing that these Early Intervention programs are making a significant difference in the lives and abilities of children with Autism.  The University of Washington in Seattle has published a paper on one such study.  This five-year study involved US toddlers who had been diagnosed with Autism. You can read more about the effectiveness of Early Intervention as found in the study at the University of Washington by clicking this link:   http://www.medilexicon.com/medicalnews.php?newsid=172495 

*People mentioned as having Asperger’s Syndrome may or may not have actually have been diagnosed with an ASD.

————————————————————-
2.  In the News – Is Abilify® Safe for Children with Autism?

Autism Spectrum Disorder is a neurobiological condition that cannot be cured.  Although medications do not fully alleviate the symptoms, it is common for physicians to prescribe a variety of medications to help improve a child with Autism’s outlook and circumstances.

Anti-anxiety drugs, antidepressants, mood stabilizers, and drugs for hyperactivity are all commonly used to lessen the effects of social anxiety, depression, fear, sensory issues, and additional emotional distresses that can cause problems for children with ASD.

With trial and error, the correct medication course and dosage can make all the difference in the life of a child with Autism or ASD.  Medication, while not appropriate for all children with Autism, can change the course for some children, allowing for a life of independence. 

Researchers are working to find medications that can be used to treat the symptoms of ASD in children.  Some medications can serve dual purposes, like an anti-seizure medication that also happens to be a mood stabilizer.  Finding safe medication choices for citizens is a job that the US Food and Drug Administration takes very seriously. 

Researchers, physicians, parents, and patients can feel relatively certain that when a drug is approved by the FDA for pediatric use, it is safe to use in that capacity.  Recently, the FDA approved the drug Abilify® to treat irritability in children with Autism Spectrum Disorder.  You can read the official announcement from Bristol-Myers Squibb Company and the FDA here:  http://www.medilexicon.com/medicalnews.php?newsid=172339
*People mentioned as having Asperger’s Syndrome may or may not have actually have been diagnosed with an ASD.

————————————————————

3. Prominent People Linked with ASD – Actress Daryl Hannah
Daryl Hannah, a very successful American motion picture actress, is said to have been diagnosed with “borderline Autism” as a child.   Born in December 1960, the 49 year old actress is best known for her roles in Splash, Wall Street, Roxanne, and Kill Bill. 

One source sites her sister as remembering Daryl as having trouble sleeping and being a day dreamer who enjoyed her privacy.  This is proof, once again, that a diagnosis of Autism or ASD does not necessarily indicate a poor outcome.

You can read more about Daryl Hannah by clicking these links: 

http://en.wikipedia.org/wiki/Daryl_Hannah

http://www.moono.com/html/daryl-hannah/daryl-hannah-pictures.cfm

*The person mentioned above may or may not have Asperger’s Syndrome.
————————————————————-

I hope this month’s newsletter has intrigued you and provided new and useful information.

The next edition of the newsletter is due in January, 2010.
      
And as ever … please send in any inspirational stories, any questions that you would like our team of experts to answer, any topics that you wish to be discussed, and news stories that you want to share VIA THE BLOG.

We will publish as many as we can.

Until next month………

Best Wishes

Dave Angel

Well it’s hard to believe that 2009 is now almost a memory and the holidays are well and truly upon us.

I would like to take this opportunity to wish you and your family a happy festive season and a prosperous new year.

I would also like to thank all of you who read the blog, contribute comments, support one another and me – you all really help to keep the website and community alive.

With that said this week’s blog post is just coming up (also watch out for December’s newsletter which I aim to complete in the next few days).

Here’s the article …

Question

How do I equip my teenaged son for future intimate relationships?

Answer

The teen years are such a jumble of drama, hormones, new experiences, and did I say drama?  One minute your son is acting like your wonderful baby boy and the next he’s morphing into someone you’ve never met.  Now add Asperger’s Syndrome to the mix.  This combination is enough to send any mother running into the sunset!  Calm down and take a deep breath.  It really will be okay.

Puberty brings about an incredible amount of changes.  If you two haven’t talked about these changes, you should plan a discussion soon.  He’ll need to know about the transformation he is undergoing.  Prepare him with facts and precise information.  Treat the topics as serious, technical discussion; he will appreciate the detail.   Prepare him for the feelings he’ll soon experience so he can respond and react appropriately.

Topics of Importance

•    Personal hygiene-body changes will bring about the need for a new cleanliness routine

•    Emotions-guidance to deal with his feelings about dating and relationships

•    Sex Education-guidelines on what is appropriate behavior, when and where

Tools of Importance

•    School personnel-for help with an educational plan and therapies provided during the school day

•    Medical personnel-to treat any health problems that may be ongoing or new ones that crop up

•    Mental Health personnel-to help deal with all of the changes, to provide therapies in addition to school offerings

•    Family-emotional support that promotes a healthy self-image and assistance in all areas of life

To-Dos of Importance

•    Self-Help resources-encourage him to read books and find support groups that are directed to the individual with Asperger’s for personalized help

•    Resources-find books that you can read and support groups to help prepare yourself to help him make this transition

•    Research-studies, articles, videos, age-appropriate social stories,  and other real examples of assistance for both of you

To get you started, “Adolescence on the Autism Spectrum:  A Parent’s Guide to Cognitive, Social, Physical, and Transition Needs of Teenagers with Autism Spectrum Disorders” by Chantal Sicile-Kira is an excellent resource for the conversations you are planning to have with your son.   This guide offers strategies for you, as the parent, to help prepare your teenager for adulthood.

Approach this time in your son’s life as you would any other-another stepping stone to adulthood.  The foundation you build for your son now will help enable him to transition to independence fully equipped to live life as a normal functioning adult with healthy, intimate relationships.

Take Care

Dave Angel

=============================================================

============================================================

Hi there,

Welcome to this week’s blog post about social skills training, therapy and Aspergers; here it is …

Question

What therapy is available for a child with Aspergers on social skills training?

Answer

We take social skills for granted.  We just assume that everyone learns to handle socialization in the same way, on the same level, and at the same timeframe.  Nothing could be further from the truth.  We’re all different, live in different environments, and learn different skills according to our surroundings.  When we come across an individual with poor social skills we assume that person has had no home training, has been isolated or worse, neglected by the family.  Sometimes there are real reasons for the lack of social skills.  One of those reasons is Asperger’s Syndrome.

People with Asperger’s Syndrome have trouble with social interaction.  They have to be taught social skills like most people learn the alphabet-exposure and rote drill.  One of the most common ways to teach social skills to people with Asperger’s is social skills therapy.

If you search for information on social skills therapy, you will find that there are several different approaches available.  Group therapy, individual therapy, school therapy, and home therapy are a few avenues to explore.

Group therapy is often conducted with a small number of people with Asperger’s.  The therapist will help lead a group discussion and allow time for practicing one-on-one conversation starters.

Individual therapy can be performed by an occupational therapist, psychologist or social worker who has developed insight into the needs of people with Asperger’s.  The therapist will assist the client in areas of weakness which could be as basic as eye contact in the beginning.

School therapy is usually similar to any other group social skills therapy.  The students are grouped according to age and ability and utilize games to help with playing together and basic social conversation, among other goals.

Home therapy is a program put together by the family, for the family.  Everyone participates and helps teach (and learn) social skills together.   There are books and videos that a family can use to create a home therapy program.

“Social Skills Activities for Special Children” by Darlene Mannix is a book that can be used in a home therapy program or other social skills therapy environments.   There are 142 lesson opportunities that will help teach basic social skills in real-life situations.  The hands-on activities included will allow the child to work through and practice the skills being taught.  Using humor, the stories will draw the child in and allow for real, practical learning to take place.

Social skills are necessary for a person to function in the world.  Choose a program that is comfortable for you and your child.  Your goal is to give your child the skills he needs for independence.  Basic social skills therapy is a great place to start.

Thanks,

Dave Angel

=============================================================

============================================================

Hi and welcome to this week’s blog post which looks at how having a child with Aspergers can affect your family situation.

Before the article a quick reminder to grab a copy of my latest ebook “How To Help Your Child with Aspergers during the Christmas Holiday Season” for free over the next 6 days.

Go to the following web page now for the details …

http://www.parentingaspergerscommunity.com/public/373.cfm

Here’s this week’s article –

Question

I have a son with Aspergers and am in denial about my family situation but I want to start to take some control back where should I start?

Answer

The feelings you are experiencing are completely normal.  A diagnosis of Asperger’s Syndrome brings with it a mourning process.  Every parent faced with a life-changing situation will need time (some more than others will) to sort out the emotions.

Denial is natural.  Even if the diagnosis has been a long time coming, you still feel like someone ripped the rug from beneath your feet.  Your first reaction, not my child, is not just common but expected.  Be aware that there are several steps in the mourning process.  Anger and depression are other steps of mourning that can come at any time.

The fact that you sense the need to take control shows that you are moving through the process.  You are reaching acceptance.  Your child needs you and you want to offer him the very best support possible.  Here are some ideas you can use to regain control of your home life.

*    Finding support is crucial.  Autism support groups are a great place to connect with other parents.  You do not have to go through this trial alone.  Gathering with others living with Asperger’s can give you the strength you need to find acceptance.

*    Arm yourself with information on Asperger’s Syndrome. Read books, consult specialists, and contact research organizations. Knowledge equals power.  When you know what to expect, your situation becomes smaller than you are, allowing you to conquer what once seemed too big.

*    Work together as a family to change your circumstances.  Do the things you have been avoiding because of the diagnosis.  Get out of the house together, enjoy each other, and don’t worry about what other people think or say.

*    Consider going to a counselor.  Sometimes we need a neutral, caring professional to talk with about our situation.  Couples counseling can also help.  Having a special needs child can be tough on a marriage.  Group therapy for the family can get everyone on the same page, united and ready to move forward.

*    Now you can get down to the business of treatment.  Children with Asperger’s usually do very well with a little assistance.  Discuss treatment options with your child’s physician, psychologist, and school special education team.

You will find that taking action, even if you have to start out with baby steps, will help you get out of that hole called denial and have you moving along toward a brighter future.

Have a great week,

Dave Angel

PS – Don’t forget to check out the current 6 day special offer deal for my latest ebook “How To Help Your Child with Aspergers during the Christmas Holiday Season” at –
http://www.parentingaspergerscommunity.com/public/373.cfm

=============================================================

http://www.parentingaspergerscommunity.com/members/376.cfm
============================================================