The Future for Children with Aspergers
Hello again here’s this week latest blog post coming up…….
But just before that a big thank you and well done to last week’s competition winner who is Sharon Clewell - a free copy of the “Parenting Asperger’s Resource Guide Volume 2†is on it’s way shortly to you Sharon ………..
…….If you wish to read her great teenager tip it is Number 3 in the comments section on the following blog page:
This week it could be your chance to win by adding some advice or a comment on the topic of the future for children with Aspergers…..so make sure you add your comments to be in with a chance……
So here we go for week 4’s exclusive sample from the Brand New “Parenting Asperger’s Resource Guide Volume 2†(which is to be released in early February); it is based on the following question I was asked about the future for children with Aspergers…..
Question
What will the future be for children with Asperger’s? How will they fit in with the ever-escalating tempo of today’s and the future world?
Asperger’s Syndrome sufferers have an autism spectrum disorder that creates social problems characterized by a lack of empathy, inability to form friendships, intense absorption in special interests, and a strong need for repetitive rituals. In addition, they may be intensely affected or not affected at all by sensory input. Will these children be able to access effective treatments for, or be cured of, Asperger’s Syndrome as they get older? If not, will they be able to fit into the world of the future? How difficult will the future be for them?
As of 2007, no studies of long-term outcomes of individuals with Asperger’s Syndrome or follow-up studies of children with AS are available. Individuals with AS appear to have normal life expectancies, but have more conditions such as depression and anxiety. Although social impairment seems to be lifelong, generally, positive improvements can be made with support and training. ASD symptoms seem to diminish over time. AS has not prevented many adults from major accomplishments in various endeavours in the past and won’t in the future either.
Some children with AS will still require special educational classes because of social and behavioral problems, but many will attend regular education classes, too. Adolescents with AS may have difficulty with self-care, organization, and handling social and romantic relationships. Some will remain at home, but many will attend college, marry, and work, which is no real difference to the general population. Depression is often due to repeated failure in social interaction and mood disorders may develop, but treatments are being developed that are quite effective. Education of families in effective AS strategies will be crucial in improving outcomes in AS children. Prognosis may be improved by diagnosis at younger ages and early intervention.
Future research in AS will create a detailed model of the dysfunction and integrate various treatments into a cohesive and effective plan. Carefully designed and rigorous scientific studies, which are valid and reliable, will define the differences between Asperger’s Syndrome and autism, as well as determine which of many treatments and medications available are most effective. Cormorbid disorders (those that often appear with AS) and genetics will also be researched. Advances in MRI technology will allow neuroimaging that creates a “picture†of an individual’s brain and how it functions, fails to function, or improves in function after treatment. This will affect diagnosis and determine which treatments are most effective.
Social networks are the future of the Internet. They will be organized around interests and challenges, including Asperger’s, and become the means of communication. Internet communities will show who we are, what we believe in, give us information and advice, and provide a social network. People with Asperger’s will be able to find friends online – others with Asperger’s and others who don’t have it. Check out www.WrongPlanet.Net as an example. Through the internet, children with any disability will be able to talk to people from all over the world. Communication will be instantaneous. Since Aspies have great language skills, social networks should make social interaction much easier for Aspies, both young and old.
Technology will be developed to meet people’s needs, including the needs of the disabled, and provide access to the world for everyone. Problems dealing with physical and social environments in the real world will be eliminated through the use of technology.
On the internet, those with Asperger’s will be able to create a private space, exclusively to people with autism and Asperger’s Syndrome. They will create their own customized environment, that is, a virtual world just for them. In the virtual world, disabilities will be reduced or even become strengths.
Assistive technology will come into its own. Technology, such as the Korowai 3000, will really make a difference in learning disabilities and reading problems. This program will help children with Asperger’s, autism, cerebral palsy, blindness, opposition-defiance, Tourette’s, neurological and processing problems, and dyslexia. The individualized program is networked and lessons can be saved and accessed from anywhere. On the Kurzweil website, www.kurzweiledu.com, you can see a demo of it. Books can be scanned into the program and it reads material on the internet, enabling students who have difficulty doing research to be successful. Children sit at the computer using headphones, and no one can tell if they need to go over material a dozen times until they understand it. It teaches math, English, social studies and more.
As we look at the possible future of the world, it seems to me that the “ever escalating tempo†you mention, actually is an increase in technology and improvement in our abilities to solve problems, address disabilities, and ease disorders. For people with Asperger’s the future looks bright, with many new treatments and technologies that will be available to help ameliorate the difficulties of Asperger’s, provide opportunities to create virtual worlds in which challenges are surmountable, and explore the real world using assistive technology.
Well that’s all for the article – but don’t forget to add your “future†tip or comment to the blog for a chance to win a Brand New free copy of the “Parenting Asperger’s Resource Guide Volume 2â€â€¦â€¦
Best Wishes
Dave Angel
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What a great article I feel so much more optimistic about my daughters future.
Newly diagnosed
Cindy
Comment by Cindy — January 23, 2008 @ 4:57 am
Thanks for that information Dave; I’ll pass is on to my son to read (8 1/2).
I have a question: we live in the UK and I’ve researched things like ’summer camps’ for Aspies. There are plenty in the USA, although expensive, but NONE at all are to be found in the UK! Business idea for anyone?
If the costs were not prohibitive, camps for Aspies would be popular here I’m sure.
Does anyone actually know of any in the U.K. - perhaps it eluded me!?
Kind regards,
Lesley
Comment by Lesley — January 23, 2008 @ 4:57 am
i love your information, it makes me feel up to date with the latest news, and saves me going through mountains of books to find relevant articles
Comment by vicki payne — January 23, 2008 @ 5:35 am
Thank you for the positive article on the Future for Children with Aspergers. As a parent of a child with Aspergers, the future is never far from my mind. There is so much uncertainty about schooling and further education and so many problems with the development of social relationships that thoughts of my child’s future can at times seem very grim. It was very reassuring to read the article and learn that our children are likely to have opportunities and skills to help them build and establish a happy adult life.
Thank you for bringing this article to my attention.
Comment by Audrey Melrose — January 23, 2008 @ 5:46 am
I was very pleased to see how much in harmony this article was to the counsel my wife and i received this week. Our son, now 18, is trying to find his way through his first year of college. He struggled mightily with the routine. We pulled back and re-focused his direction away from a degree and had him concentrate on one or two classes of greatest interest. Our goal now was focused training in the area of his interest and not the broad degree. With a narrower focus, we will incorporate social behavior as part of the goal…He will take art classes but to be a successful artist, he will need to have clean teeth and no b.o. or else no body will come to his studio. It trades a wide base for a narrow one, but incorporates needed social requirements into his “ego centric” (not selfish) life.
He seems to be excited about the greater degree of focus and even appears much less stressed out.
Comment by Don Wright — January 23, 2008 @ 7:56 am
I just love Dave! Praise God!! I am so grateful and Blessed that I now have some resources to look forward too. Thank you for letting me know there is hope. Ironically I was just discussing this very topic last night!
Comment by Bella Condini — January 23, 2008 @ 8:32 am
I have an 8 1/2 yr old. The biggest problem for him is people don’t get him , understand him. I thinks every teacher ,principal, day care worker ect. should be trained in autism. They should know how to handle a situation when it comes up. As a parent I am educating myself in Aspergers and Autism. I have learned so much and I see alot of undiagnosed people who have issues too. I am confident that my son will grow up to be a fine young man. It will take a lot of teaching on our part, but he is worth it.
Thank you for your article
Comment by D DuBois — January 23, 2008 @ 2:00 pm
Hello parents all
Kurzweil is an amazing program. However people considering it should realize that to use it’s many features a person must scan in each page of the book/assignment to be read. That means standing with the scanner and carefully scanning each page. So if your child needs to read a 100 page book, quite alot!!! of time is required. The software is very good at “reading” the scanned document but can make mistakes which can frustrate our perfectionist AS kids. One good option is the text can be read in several “voices”. My son certainly had a preference for “voice” and would not listen to some of them! Using Kurzweil requires quite alot of training to use all of it’s features well.
We’ve used Kidspiration/Inspiration software (another software vendor). This product is good for organizing thinking and can be quite helpful.
Hope this helps.
Comment by L M — January 23, 2008 @ 2:24 pm
Just read your article. It makes me feel that i am not alone with my 9 year old son who is in the process of being diagnosed. Teachers just think that they are naughty or defiant children. Itotally agree with comment by D DuBois 23 January 2008. All taechers classroom assistants should all be trained in autism and how to handle different situations. I am all for finding out more information and learning about how to help my son.
Comment by Lisa — January 23, 2008 @ 5:01 pm
I sit here in my office with tears rolling down my cheeks after reading this and your last article,on teenagers.Thanks dave for all the info. you provide.My son is twelve and has been
through more in those years than my 50.He was born and within hours of his birth he developed a staph infection which put him in intensive care for two weeks.He was also given very aggressive antibiotics which i believe had somthing to do with his being diagnosed with high functioning autism and yes he is an aspie.He also had deep cataracts and since has had three laser operations to help with his vision.The thing is with everything he had going on early we didn’t pick up on the autism and aspergers till late,he was just starting school when the cataracts came to the surface enough to
do surgery.We thought with his vision problem he was just an intense child who couldn’t see well.
And some of it was we didn’t know about these conditions and then some denial was in order.So……my wife and i are getting a late start and trying to catch up fast on what to do and how to do it.He was 8 when his eyes got fixed and another year and a half to figure out there was somthing else going on and what it was.So we have known about this for about 2 years,not that we did anything wrong dut it is hard not feeling your behind, but also where to get good logical information for your child.It can be over-whelming at times.Again Dave thanks,the articles are a good read and the information is not put out there like [YOU NEED TO DO THIS}but as, here is somthing to look at and may be of some help.Lets face it there is no right or wrong in this,it’s what works and what doesn’t that we as parents of these special children need to have access to so we can at least try and give our children every opportunity
in life that we can.They deserve to live there lives to the fullest and be happy,and we as parents want to be able to help and guide them.
It will be hard enough without the challenges of them looking at things differently than the given norm.
Comment by Brian Sagar — January 23, 2008 @ 5:07 pm
Great article and I feel optomistic. My son 25,was just diagnosed with Aspergers. He has struggled all these years. Although he has graduataed college. He is having a hard time finding a job since he freezes up on interviews and does not have good social skills. As a parent, I am very upset this was not diagnosed at a much earlier age where we could of intervened. But there is hope. I would like to find out if there are any programs or skill courses, classes,or DVD’s in Baltimore, MD? Also it is hard to find doctors who have an expertise in Aspergers. Open to suggestions. Thanks
Comment by Z. Alba — January 23, 2008 @ 5:38 pm
Sine the future of AS people does not necessarily include employment (my daugher would simply not cope) what assistance is available for them in other countries? In Australia she receives disability support payments, which help a lot in the process of teaching her to live independently, since we won’t be around forever.
Comment by Christine Grayden — January 23, 2008 @ 7:42 pm
thank you for all the hard work.you make all the difference.you give hope. rea
Comment by Rea Ottinger — January 24, 2008 @ 12:02 am
Thank you for an excellent article which does give me hope. Computers are my 8 year old (newly diagnosed) son’s favourite medium. I live in Australia, and I have to say that being an Aspie’s mum is a nightmare. My son had problems at school and our entire family found ourself to be at the centre of controversy. The education programs for children with disabilities in Australia can be very poor indeed, and we had a lot of trouble convincing the School we were not just excusing his bad behaviour.
In terms of the future, as I see it Aspies do have a lot to offer. I have worked in a University setting, and believe me, it’s Aspie Land.
For all you parents out there worrying, my son had improved dramatically since the diagnosis. We are in the process of changing schools, which is awkward, but counselling and social skills training has made a huge difference. My son played for an U10 football team at 7 and won an Inspiration award for his determination and enthusiasm.
Thanks Dave for your newsletter and E-Book.
Go Aspies
Kathleen
Comment by Kathleen A-Ross — January 24, 2008 @ 12:41 am
Thank you for all the information you have sent me. My 3 year old grand daughter has just being diagnosed with AS.My 6 year old grandson who is her brother has Autism and Intellectual dissabilities. I had made it my misson to get all the information I can as to help my Son and his wife who do such a wonderful job. I would love to win the book as I am only a pensioner and it would help us all so much. I have collected all the AS help you have given me and truly thankful for your Knoledge.Your faithfull Maureen Rouse.
Comment by Maureen Rouse — January 24, 2008 @ 1:35 am
My 8yr. old son is in the process of being diagnosed with possible Asperger’s. Even though he is still in the process, his teacher has taken it upon herself to not only ask me questions but educate herself on her own time through workshops and research to better help my son. I am so impressed with her, and the fact there still are teachers out there willing to go the extra mile even when they are so stretched already, to help a child. Thank you for your informative articles, they help a great deal, and the comments from other parents. It feels like we are not alone even when in our own community it may feel that way sometimes. My son’s greatest challenge of course is the social issues, living in a complex of the same children who play together constantly but often leave him out. He gets depressed. As he gets older I hope to utilize the Internet opportunities for connecting with other kids that have the same challenges. Thanks for this info!
Sincerely,
Y.McIsaac, Kelowna, BC
Comment by yvonne McIsaac — January 24, 2008 @ 2:06 am
I have a question, my almost eleven year old son with aspergers has major problems controling his emotions when angry. We have strategies in place at home but I worry about when he starts back at school. We live in New Zealand where support services for people with Autism and aspergers is seriously lacking! Does anyone have any advice for us?
Comment by Ilonka torok — January 24, 2008 @ 2:26 am
Many, many Aspies grow up to have great jobs and marry and have children! They have their quirks but so does everybody! I know, I’m married to an undiagnosed Aspie! Our Dr says that he treated and diagnosed an Aspie Millionarie! He excelled in his special interest area in ‘the real world’ and made millions! There is ALWAYS hope for our Aspie kids!
Comment by Gennie (Jeanette) Smith — January 24, 2008 @ 3:04 am
Thank you David since i have been reading your stories and feedback it makes me feel like i am not alone.my son is 11 going to be 12 this year he has as also adha.somes days are hard but sometimes it is just the littlest thing i my read and it clicks for me.We live in australia and i also belive that teachers and carers should have more training.often people say but he looks normal how many of you have heard that!thanks again.
Comment by Lisa Larcombe — January 24, 2008 @ 5:27 am
Yes, I agree the technology age will have many advantages and I can already see my 17 year old more confident due to friends from other countries who understand him that he has met through on line roll playing on the internet AND He’s also grown socially here at high school thanks to Animae club where he’s not considered “weird or antisocial” for not being interested in sports! However - don’t you feel to much technology supports isolation and not building productive relationships? I admit I’m still confused about expectations for my son - that’s why I appreciate your work - and the feedback from others. Please keep it coming!
Comment by Marcia — January 24, 2008 @ 5:59 am
WHAT DO YOU DO WHEN THE SCHOOL WON’T GIVE YOUR CHILD WITH ASPERGERS ANY EXTRA HELP? DOCTOR SAYS HE NEEDS SPEECH OR LANGUAGE THERAPY, BUT IF THE SCHOOL DENIES, OR WANT TO TAKE IT AWAY FOR THE NEXT YEAR. ISN’T THERE FEDERAL LAWS TO MAKE THE SCHOOL DO WHAT THEY NEED TO DO. MY 9 YR. OLD SON WAS JUST DIAGNOSED, AND THEY HAVEN’T EVEN OPENED UP THE I.E.P. YET.
Comment by ELAINE PAYNE — January 24, 2008 @ 6:15 pm
hi thanks for your optimism david,
apologies if i appear to lower the tone somewhat. however my situation at present isnt good in fact i cannot think of a time when i have felt so physically and mentally drained,as the LA, through blatant ignorance and misinterpretation have put my little family through the ringer a few times over. im one parent disabled (fms)with two sons. my youngest now 12 was diagnosed with aspergers tourettes add sid. The LA disputed this as they hadnt “seen anything” labeling me FII
my son hasnt been to school for 3 years now as one failed attempt after another to get him to go to school was unsuccessful. Professionals gave opinions sticking together, care orders were sought,ICO s granted, EPO s issued twice.All i ever asked of them was an assessment….Only now the assessment materialises, i was so excited but now i find the very same ed psyche that has tripped me up all the way through this is the manager of sp and language where my son has gone.Shall i predict the outcome ??? i cannot take them to tribunal either as now the educational aspect has merged with care proceedings and is now within the secret family courts. I have had to finish all legal representation and go self litigant as its the only way i can say my piece within the court arena…sorry for going on ….
take care,
paula
Comment by paula — January 25, 2008 @ 2:34 am
Hello everyone,
My almost 3 year old grandson is in the midst of being diagnosed with Aspergers and is doing fairly well. As a former Spec. Ed. teacher I am aware of the importance of early intervention. I am finding it scary at times, but have found some really good professionals to work with Nathan and do his assessments. There are more problems with family and friends, and their misconceptions. Hopefully, education of the public and schools will help our children in finding all the help we can get. Sincerely, Denise Stenberg
Comment by Denise L. Stenberg — January 25, 2008 @ 9:16 pm
HINT: I find that keeping toys/activities sorted in clear totes helps a lot. My grandson can look into the totes without having to open them, and pick the toys/activities he wants to use. Then it’s back into the tote when he’s done. This way he doesn’t get overstimulated by too many things out at once, or have too much to clean up. Denise Stenberg
Comment by Denise L. Stenberg — January 25, 2008 @ 9:22 pm
re camps in uk i have also looked and as yet not came across any but like you i think it would be a good idea if run by people that knew what they were doing will keep an eye open as well in this world of internet who knows ¬
Comment by Chelle — January 26, 2008 @ 6:17 pm
Thanks much to Dave for putting together this awesome blog and sites for parents and caregivers.
I want to encourage all your teachers and principals to learn about Asperger’s if they don’t know much about it. I happen to be a lucky lady who has a school system that supports me and our kids.
Our principal, Christine Laughlin, is very committed to learning about Asperger’s, and she is doing reading, and signing her teachers up for conferences and such.
I have been blessed with the support of not only Dave’s site(s), but with being the BIGGEST advocate my son has!
Keep on keeping on!!
Comment by Dawn Miller — January 27, 2008 @ 4:06 pm
Dear all
For all of those with younger AS kids, these individuals can make amazing leaps as they enter their late teens and early 20’s. My 17 year old wrote his first regular academic exam in a regular classroom (noise and all). He has been so sensitive to light/noise/movement that I had *almost* given up hope for his academic success. My early 20’s son, just spend 2 nights away at a conference with subject matter to one of his interests and managed! This young man had never stayed away from home before (sounds weird, but I’ve never had support/assistance from my family, so this never happened!) So you have to keep on watching your children for strengths/weakness and offering them challenges with help. Never give up (no matter how tired and mentally,physically and emotionally exhausted you are!) Progress can be made at almost any age - even in middle age!
Comment by Luara — January 27, 2008 @ 4:58 pm
Laura
Thank you for the encouragement. My 12 year old has trouble in class and rarely leaves the house. He has a great deal of support and services but is just now feeling the frustration of knowing he is different socially and how that impacts girls (smile). It hasn’t been easy but just knowing your story has helped. We are facing decisions about high school. I am considering alternatives now but don’t want to not let him try… so many decisions but knowing that things will get better helps. Pam
Comment by PJ Hill — January 29, 2008 @ 1:47 pm
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Pingback by Aspergers Syndrome-Aspergers-Aspergers Disease-Aspergers Disorder-Autism Aspergers » Children with Aspergers and Their Pets……… — January 29, 2008 @ 5:07 pm
laura , its so great to read something positive like that , we are struggling with our daughter who is aspie + adhd , and your sooo right regarding the mental emotional and physical exhaustion, im so tired of having to fight for this and that then fight her as shes now 13
that alone should say it all , the future terrifies me but as with any teen us parents are enemy #1!!! It just like living with a bully /unexploded bomb and sometimes its so hard to see past this then all of a sudden…progress a huge step ,its great to see other peoples accounts with older kids , as my daughter is very high functioning most do just think shes an obnoxious little teen, the hope that she will manage and succeed in her own way and have a life somehow , is such a relief , as im sure as everyone knows there are days you cant seem to imagine things past the next melt down, congratulations on keeping faith in yourself and your child i hope i only do half as well.
Comment by helen.h — January 29, 2008 @ 5:53 pm
If anyone has advice. My 15 year old aspie son has met a 15 year old aspie girl. They are great together, and they phone each other and make plans to get together. I have monitored the phone calls and they talk about toys and their pets but I am concerned that as they are both teenagers at what point might this be a problem hormonely. My son like any teenager shies away from the subject when I try to talk about how he feels.. but I know he has started as he recently wanted a more fashionable haircut( the first for him) and has asked help with clothes as he doesnt know what to wear sometimes. They are both so naive for their ages compared to other friends children and this is obviously the attraction as well, there is no threat and everything is very innocent.. But I have concerned like any teenagers mum. Any advice?
Comment by Elizabeth Ellis — January 29, 2008 @ 6:05 pm
Dave,
I’m glad my thoughts are of help to others.
Laura Manning a1d37001@telus.net
Comment by Laura Manning — January 29, 2008 @ 7:14 pm
I have only just joined Dave’s World and have found it all interesting and helpful. My son is 17, statemented at 4, diagnosed with ASD at 9 and school got better and better for him, especially in comp., where he was mainstream with STF support. I am so proud of his 1 C and 4 Ds at GCSE. As most schools around here dont have 6thforms, he started Public Services at FE in Sept. If he gets through this foundation course he’ll go on to 2 year diploma course. But its a big IF. He is lost in college, the support is minimal, college staff seem unaware and uninformed about LDs unless its dyslexia. Because my son is refusing in class support the college is unable or unwilling to offer any alternatives. The college seems to provide for pupils with severe LDs in their own discrete groups but mainstream SN students (unless the college decides they are dyslexic!) are not catered for and certainly nothing like what the LEA provided 11-16. I cant even find out how mainstream SN students are funded in FE colleges in Wales.
My son has no particular talent, hobby or sport that he is good at. He supports our city football team and goes to every home game with his Dad. He also supports Man. U from a distance and can be quite “nerdy” about it all! He also loves his Playstation -again for football games and fantasies. He can get quite “nerdy” about it all! He has very few friends and I think his life is lonely and I worry so much about the future. I do appreciate the ideas about IT socialising, networking and penpals but he spends enough time in his room and I want him to find and enjoy the world out there.
Last summer he got a job a burger chain (not disclosing his LD) he was not kept on after 4 weeks probation as he was deemed “too slow on the uptake” and I think some peer bullying went on. Should I have insisted that he disclose his learning difficulties?
Would love to hear news, hope and ideas from others so including my email. For those of you with younger children ask me all the questions you like - I’ve got the 11-16 Tshirt its just 16+ I’m finding hard!
moira.connell@ntlworld.com
Comment by Moira — February 18, 2008 @ 7:32 pm
My 8 year old son was diagnosed with Aspergers about two years ago. In December we have started Neurofeedback; can you tell me of success using this method to help my son?
The first couple visits, it seemed that we may be on our way to success. However about a month ago (8 sessions) there was a session when I sat in the waiting area and listened to my son verbally abuse the doctor for at least a half an hour. I was in tears by the time the session was complete. Ever since this visit my son seems okay with the scheduled session until we are on our way and then he says he does not want to play the computer game. On the Saturday visit’s he will go back with doctor #2 and ‘attempt’ the session but will always touch the screen and this casues the system to freeze and then the session will end. BUT during the week with Doctor #1, my son is verbally abusive; in ways I have never seen him at home - it is almost like he has been taken over (the language to come out of this young boys mouth…) WOW… TODAY was unbelievable when my son became physically aggressive with the doctor. This went on for 45 minutes today and then all of a sudden my son says “okay; let’s do the game” The doctor hooks everything up and then sure enough my son touches the screen - The doctor re-boots and my son touches the screen again; the doctor reboots three times… until finally my son starts hitting the doctor again and kicking the table to the point I thought he was going to knock everything off.
I want to say - enough is enough but the doctor says it will not last forever - but how can this help with the way things are going. The doctor says it is a point of staying strong and determined and not giving in…
Does anybody have any feed back on this at all???
Comment by Michelle Gambrel — March 25, 2008 @ 2:02 am
This was a great article. We are preparing for the future as our 17 year old finishes his junior year of high school. He is recently diagnosed with AS, but has suffered with severe ADHD, OCD, and disgraphia since Kindg. School has always been a struggle for him and he has found a place just for himself on the internet. I am afraid that he will be unable to graduate because school is very difficult for him to “conform” to and even though he has a great IEP it is not enough to help him through the day-to-day grind of school. We are currently looking into other alternatives to finishing the highschool experience via telecommuting or Daniel completing his GED. Has anyone else had experience with this?
Comment by Michele Meyer — April 9, 2008 @ 8:23 am